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Featured News
FDA accepts Biogen’s application for hemophilia A candidate (0 Comments)
Date:
05/13/2013 Don Seiffert
Associate Editor MHT- Boston Business Journal
Email
The U.S. Food and Drug Administration has accepted the second of the two applications for a biologic drug candidate to treat hemophilia that Biogen Idec. (Nasdaq:BIIB) has submitted this year.
Featured News
Two best friends, ages 6 and 7, raise $200,000 to fight rare disease (0 Comments)
Date:
05/14/2013 By Mary Murray, Senior Producer, NBC News
LOS ANGELES -- There are only about 100 people in the U.S. like 7-year-old Jonah Pournazarian.
He suffers from a rare genetic and incurable disease called Glycogen Storage Disease Type 1B. Up until the 80s, most kids with his condition didn't survive past the age of two.
But his best buddy, Dylan Siegel, wanted his friend to get better, so he wrote a book hoping to raise one million dollars to find a cure.
Featured News
Neighbor helping neighbor through lymphoma research (0 Comments)
Date:
12/19/2012 By Tamara Abbey
Craig Smith, manager of rehabilitation services at Mendota Community Hospital, readily jokes about his size. He knows no one would ever mistake him as a runner, yet that’s exactly what he’s done two years in a row as a way to support his friend and neighbor.
Smith’s friend, Ron Heider, was diagnosed with lymphoma in 2011. Smith said he wanted to do something for his friend, but felt helpless.
Featured News
Girl with crippling bone disease held by TSA agents after testing positive for traces of explosives (0 Comments)
Date:
12/19/2012 Shelbi Walser, 12, was left in tears while en route with mom to Tampa, Florida, to get treatment for her serious condition.
Twelve-year-old Shelbi Walser, who suffers from Brittle Bone Disease, was brought to tears after TSA officials detained her for nearly an hour.
A wheelchair-bound girl suffering from a crippling bone disease was temporarily detained by TSA officials in Texas after she tested positive for traces of explosive materials.
Featured News
Playing hockey with MS diagnosis (0 Comments)
Date:
12/15/2012 When Jordan Sigalet first heard the doctor say multiple sclerosis, his initial reaction was, No way.
Nope. Not him.
Must be wrong.
"For me, I didn't really accept that it was MS," Sigalet, a former Boston Bruins prospect, told ESPN.com on Thursday.
"I just thought it must be something else. I kept getting opinion after opinion."
But every opinion came back to the same jarring answer: He was suffering from the incurable disease that attacks and scars the protective covering of nerves in the brain and spinal cord.
Latest News
Charlie Knuth's family fights for boy's schooling (0 Comments)
Photo puts pride into perspective (0 Comments)
Baby Easton remains in the hospital with a cold (0 Comments)
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HopefulCircle.org has been named a finalist for the Best Disease/ Education Website in the 2011 MM&M Awards!
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