thehopefuls's blog

Evan, Work and Pompe

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Blog Topic: 
Stress

I didn't get much sleep last night due to Evan being up all night. It was about 10 o'clock when I got home from work. I went in to check on Evan before getting ready for bed and he seemed uncomfortable. Jeff said he was ok most of the evening, but I was concerned. I decided to spend the night near Evan in his room. Jeff decided a few years ago it would be best to have a recliner chair in his room incase one of us needed to be close by throughout the night. His mother had one they weren't using any longer; so it worked out nicely. I figured on getting some rest, but was up most of the night worried. The morning arrived and I was very tired. Jeff's mom came over and watched Evan so I could get some rest. She loves to spend time with Evan. They have a special bond which makes me very happy. He is doing well today!

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