Featured Blogger

thehopefuls
thehopefuls

Hello everyone! This blog is about me and my family. I've decided to share our experience with Pompe. I hope others can see there is hope, but at the same time those roadblocks are only so wide. More »

Latest Blog Postings

Evan, Work and Pompe 05/2/11 - 4:05 pm

Latest Blog Posts

Hyper MS
11.23.11 Multiple sclerosis takes; it takes sensations, mobility, memory and more. MS also gives, but its largess is no gift to me. In our pages, we oft read about how MS has stolen this or that from our compatriots in the battle. We can no longer More »
Submitted by Anonymous on 11.23.11
TreFox's picture
Craze of designer infants still alive and well
09.26.11 Parents are now able to have “designer children,” or using hereditary engineering to have precisely the kid they want. The genesis of the science included was in curtailing hereditary disorders, but the fertility market is coming under More »
Submitted by TreFox on 09.26.11
MaximillianCo's picture
Several ponder ethics of prenatal genetic testing
06.15.11 More »
Submitted by MaximillianCo on 06.15.11
Living Day to Day with Multiple Sclerosis
05.23.11 I talk to so many Fellow MS'ers everyday and I listen to what each has to say. Life with Multiple Sclerosis is a Day to Day battle. Some days may be better then others but even on those days we have pain and still carry Guilt and More »
Submitted by Anonymous on 05.23.11
Camerans Infantile Spasms:
05.23.11 I started this blog 5 years ago for my daughter Cameran(Cami) who was diagnosed with Infantile Spasms when she was 6 months old. It was a very difficult time in our lives so I reached out here and found an amazing amount of support. Even More »
Submitted by Anonymous on 05.23.11

More Blog Posts »

Most Commented Blog Posts

bradleytwos's picture
Ouch! and brownie batter and soccer and sleepovers... (3 Comments)
03.10.10 ..and a week of posts all in one becuse I am a slacker, also am seeking award for longest post title. Sunshine and Snoopy More »
Submitted by bradleytwos on 03.10.10
laurah812's picture
Our First "Dirty Day"!! (3 Comments)
03.10.10 WHAT'S NEW WITH THE WOO'S? KEEPING YOU UPDATED ON ALL THINGS WOOTEN by Jenny Now let me explain the title... Brady was in October of 07, his first warm weather was last year ... he was around 6 months old.. not really crawling yet, so he More »
Submitted by laurah812 on 03.10.10, 03/1993
superdave's picture
Naturopathy and MS (2 Comments)
03.13.10 By Travis Gleason Today, I am keeping one of my New Year’s Resolutions! I am packing myself off to see a new doctor for my MS (and for my whole health). Today I’m off to see a Naturopath. For well over 2 years, I’ve had the very good More »
Submitted by superdave on 03.13.10

More Blog Posts »

Blog Guidelines and Tips

Any registered site user on our website can have their own blog. Please view our blog guidelines and tips page for more information about our blog rules and regulations. You can also find some tips and suggestions for writing effective blog posts and how to best manage your blog.

Blog entries are not reviewed by our staff. Registered rare disease community members can post their opinions without editorial review and they are therefore solely responsible for the content and images within their postings. We also do not review user comments before they are posted. However, we do monitor these blogs and user comments frequently and will do our best to ensure that all content in this section abides by our blog guidelines and legal policies.

FDA

Report Problems to the Food and Drug Administration

Have you experienced any negative side effects from prescription drugs? Report them to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Syndicate content